D-CRIS

The Clinical Record Interactive Search (CRIS) system has been developed for use by the NIHR Mental Health Biomedical Research Centre and Dementia Unit (BRC and BRU) at the South London and Maudsley (SLaM) NHS Foundation Trust.

CRIS provides authorised researchers with regulated access to a wide range of pseudonymised information extracted from the SLaM electronic clinical records system. The CRIS system is now being deployed to four additional Trusts under the D-CRIS programme to significantly extend this research capability. 

Both CRIS and D-CRIS, funded by NIHR, offer great opportunities for partnership with healthcare and industry.

CRIS - the solution   D-CRIS - collaboration programme
     

The CLINICAL RECORD INTERACTIVE SEARCH system enables researchers to safely and securly review real life situation using information from the Trust's clinical records. This means it is easier to see patterns and trends - e.g. what treatments work for some and don't work for others.

CRIS has been specially developed to not reveal patient details to Trust researchers. The NIHR believes CRIS can make a real and positive difference to future treaments and care, for an unlimited range of conditions. 

What sort of research will CRIS help with?

CRIS has been used by researchers looking to understand:

  • Is there a test for Alzheimer's disease that can show if drugs would be the best treatment?
  • Do some drugs for schizophrenia affect physical health, e.g. diabetes?
  • Do people's home living arrangements affect how long they spend a inpatients, receiving care in hospital wards?

How are patient details protected?

Applications to access CRIS and the analyses carried out using CRIS are closely reviewed monitored and audited by a CRIS Oversight Committee, which carries representation from the SLaM Caldicott Guardian and is chaired by a service user. The Committee ensures all applications comply with ethical and legal guidelines.

CRIS was developed with extensive service user involvement and adheres to strict governance frameworks. It has passed a robust ethics approval process acutely attentive to the use of patient data. The data is used in an entirely pseudonymised and data-secure format. All patients have the choice to opt-out.

 

 

 

  • To create a world leading resource for dementia research through the integration of the instances of the CRIS system. This will give access to the data in one million patient records using federated data architecture, in order to enable researchers to identify and expand research cohorts right across the community of participants.

 

  • To contribute to the Strategy for the UK Life Sciences' aims of improving research outcomes and improving the attractiveness of the UK and a centre for global research excellence.

 

  • To work in a truly collaborative way, not just enabling access to pooled data but also providing tools to enable researchers across organisations to work together on joint research projects, harnessing the knowledge and skills of the community.

 

  • The solution is ready-to-go having been implemented at two Trusts already and is now being rolled-out to additional Trusts, greatly extending the breadth and depth of the date.

 

  • The platform will be in place by March 2014. Research groups are already active in defining and designing collaborative reseach programmes.

 

The participating NHS Trusts are Camden and Islington, Oxford Health, Cambridgeshire and Peterborough, West London Mental Health and South London and Maudsley. 

Product Description -- D-CRIS IG Assurance -- CRIS Security Model -- PPI Template -- D-CRIS Industry

 

 

 

 

 

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