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Patient and Carer Race Equality Framework

(PCREF) News
Patient and Carer Race Equality Framework

(PCREF) News
Patient and Carer Race Equality Framework

(PCREF) News
Patient and Carer Race Equality Framework

(PCREF) News
Patient and Carer Race Equality Framework (PCREF)
at South London and Maudsley

Hello and welcome to August’s PCREF newsletter!
Whether you are joining us for the first time and want to find out more about the programme or you have already been part of the journey so far, we hope this monthly newsletter will help keep you up to date with the progress we are making together on the Patient and Carer Race Equality Framework and the latest opportunities to get involved and have your say.

We have launched phase two of the programme focusing on the 12 key areas (organisational competencies) where we need to make changes. For more information about the programme, click HERE

Our PCREF Programme is a partnership between the Trust and PCREF host organisations Lambeth Black Thrive and Croydon BME Forum. Our Partnership brings together Trust staff and Black service users, their carers and communities to jointly develop the PCREF, and our monthly newsletter also brings you updates from the three groups – please join us!

Have Your Say – PCREF questionnaire


We want to ensure that your voice is heard on a wider scale and we are particularly encouraging service users, carers, community members and staff from Black African, Black Caribbean and Black mixed and Black Other census groups* to share your views and suggestions on how mental health services can be improved.

Please give us your feedback by completing the NHS England questionnaire. It should take about 15 minutes to complete and importantly your feedback will inform the changes we make to our services and help shape the framework that will be adopted by all mental health trusts across the country.

If you have any questions or suggestions to improve the questionnaire, please email: PCREFapproach@slam.nhs.uk

*The questionnaire is open to all ethnic groups, although South London and Maudsley’s PCREF programme is initially focussed on the Black community.

Updates from our three constituencies

Black Community Group
Where are we now? - We know that many people are passionate about joining PCREF and making a real change, this is why we are currently recruiting our activists and allies. Becoming part of this social movement will include several training opportunities that will allow our activists and allies to share their knowledge and use this to raise awareness for PCREF.

Croydon BME Forum and Lambeth Black Thrive are hosting the PCREF focus groups starting from the 23rd August 2021. We will be using these focus groups to discuss PCREF in more depth, explore the questionnaire and find out what being an activist and ally will entail. This will also be a great opportunity to share our thoughts and experiences freely and use this to see how PCREF can make a real change in our community. We will explore the recurrent themes that act as barriers to accessing healthcare and how we can overcome these barriers.

Filling in the NHSE questionnaire is crucial in order for change to happen, your views and opinions will allow us to shape a better future of mental health services for generations to come. PCREF is giving us the opportunity to express our views and experiences freely and use this to make a real difference - click here to complete the questionnaire!

We know that becoming an activist and ally comes from the goodness of your heart, therefore we know that devotion deserves to be rewarded. We will be revealing our giveaway during the focus groups for those who decide to join our journey towards anti-racism because we know that this would not be possible without your hard work.

If this sounds like something you would be interested in, please click here to register!

Staff
PCREF have teamed up with Freedom to Speak Up (an internal support service for South London and Maudsley staff) to use their collective power as staff to notice and speak up when something does not seem right about the care and treatment of Black patients, no matter how small the issue. Staff are encouraged to seek help and support from their manager or a FTSU Advocate. If you are a member of staff at South London and Maudsley and would like to find out more, please visit their page on Maud.

In July, we mentioned our collaboration with the Recovery College to develop a series of PCREF workshops in partnership with service users, carers and communities around a range of themes. Thank you to all those who attended and participated in this first round of workshops which ended in August. We are in the process of finalising further workshops for the upcoming months, which are free to attend and open to all. To find out more, please visit the Recovery College’s website.

Staff Activists and Allies Network Update
We’ve had a couple of Network meetings now and it is great that interest is growing. We’re keen that Activists and Allies make themselves known to their local PCREF Senior Leads as well as centrally, as they want help in carrying out local PCREF work. The PCREF Senior Leads are:

  • Lorraine Gordon (PCREF Senior Lead for Southwark)
  • Leonie Down (PCREF Senior Lead for Lewisham)
  • Mahir Demir (PCREF Senior Lead for Lambeth)
  • Brenda Bartlett (PCREF Senior Lead for CAMHS)
  • Nicola Gower (PCREF Senior Lead for PMOA)
  • Kevin Vento (PCREF Senior Lead for Croydon and BDP)
  • Marina Frederick (PCREF Senior Lead for Addictions)

So as well as emailing PCREFapproach@slam.nhs.uk please do get in touch with your local PCREF Senior Lead and offer to help!

We are developing a list of tasks which we want Activists and Allies to help us with and this will be discussed at future meetings of the Network. In the meantime, the number one task we really need your help with is getting more people to complete the NHSE Questionnaire! We are particularly keen for Black staff and Black Service Users and their Carers to complete it and of course welcome everyone to fill it in.

The link to the questionnaire is below and we ask all Activists and Allies to please:

  • Complete the Questionnaire yourself
  • Ask 5 work colleagues to do so
  • Ask [or if you don’t have direct patient contact then please ask a colleague who does] 5 patients and their carers to complete it.

We are in a competition with the other 3 Pilot sites and we want your help to win!

Share your feedback on how we can improve mental health services for our Black communities by clicking here: NHS England PCREF Questionnaire.

Activism in the Workplace
At the last Network meeting we started to think about what Activism in the Workplace looks like and how it differs from the kind of activism we might carry out as part of our everyday life in the community. We heard about research being undertaken by Professor Megan Reitz (Mindfulness Works) & John Higgins (Research Fellow GameShift) who have been looking into this. From their research has emerged the following as a possible definition:

  • A definition… voices of difference that challenge the established status quo as to who gets heard and/or what should be included in the formal organisational agenda

We will be exploring this further at future Network meetings and are hopeful that John Higgins will work with us to help us develop our thinking.

So please – sign up and join the Staff Activists and Allies Network and help make a difference!

Black Service Users and Carers Group
We have recently established the Service Users and Carers group who are currently meeting regularly to develop and promote PCREF within their networks and communities.

We look forward to their updates in September’s newsletter.

Want to know more?
For more information about PCREF and how to become a PCREF Activist and Ally please visit:

Staff and Service Users and Carers: Patient and Carer Race Equality Framework (PCREF)

Community Members: PCREF - Croydon BME Forum

If this newsletter has been forwarded to you and you would like to join the PCREF mailing list, email us at PCREFapproach@slam.nhs.uk


Reimagining mental health services for
Black service users and their carers
Patient and Carer Race Equality Framework (PCREF)
at South London and Maudsley

Hello and welcome to our first PCREF News update!

Whether you are joining us for the first time and want to find out more about the programme or you have already been part of the journey so far, we hope this new monthly newsletter will help keep you up to date with the progress we are making together on the Patient and Carer Race Equality Framework and the latest opportunities to get involved and have your say.

We are now launching phase two of the programme focusing on the 12 key areas (organisational competencies) where we need to make changes. NHS England has identified 10 national organisational competencies and a further two have been identified through events held locally and the feedback we received during phase one. These organisational competencies are the skills and practices the Trust needs to focus on, to improve the way we offer and deliver services so that equity is achieved. For more information about the programme and phase one click HERE. The aim of the PCREF Approach is that it becomes an iterative process, the regular way we do things in the Trust on our journey to anti-racism and equity. This first iteration is focusing on people who use our services and their carers from Black African, Black Caribbean, Black Mixed and Black Other census categories. This is because our data shows that they are more likely to suffer poorer Access, Experience and Outcomes from the Trust’s services. We use the term Black to cover these 4 census categories throughout our PCREF material.

Our PCREF Programme is a partnership between the Trust and PCREF host organisations Lambeth Black Thrive and Croydon BME Forum. Our Partnership brings together Trust staff and Black service users, their carers and communities to jointly develop the PCREF – please join us!


Have Your Say – PCREF questionnaire

 We really want to base our PCREF work on the experiences of Black people when using our mental health services, their carers and networks, local Black community members and Black staff, and to get their views and suggestions on how these services can be improved.

Please give us your feedback by completing the NHS England survey HERE

It should take about 15 mins to complete. Your feedback will inform the changes we make to our services and help shape the framework that will be adopted locally and in every mental health trust in the country. We will be analysing the first cut of data to inform our local work from 1 August and want as many questionnaires completed as possible by then. The analysis of what you said will inform our local work on the organisational competencies running from August through to October. Once the questionnaire closes nationally, in October, there will be further analysis and the full results will be reported after that.

For more information on PCREF click HERE. If you have any questions about PCREF contact us at PCREFapproach@slam.nhs.uk


Workshops and events

We are excited to be collaborating with the Recovery College with whom we will be developing a series of PCREF workshops in partnership with service users, carers and communities around a range of themes.. The Recovery College have a series of free online workshops that are launch soon and are open to all to attend. To register please contact hello@slamrecoverycollege.co.uk

Unit 1: Racism as trauma – an introduction - Monday 19 July, 1–3pm

Unit 2: Inherited distress – transgenerational trauma - Friday 23 July, 9–11am Unit 3: Encoded exclusion – institutional re-enactments - Monday 26 July, 1 – 3pm

Unit 4: Daily disregard – interpersonal racism - Friday 30 July, 9–11am

Unit 5: Unshareable experiences – internalised racism - Monday 2 August, 1 – 3pm

Unit 6: Towards healing – deserving care - Friday 6 August, 9–11am


Get Involved - Activists and Allies Programme

We know there are lots of people who are passionate about PCREF and are keen to get involved and be part of the movement to redesign mental health care for Black people. That is why we are developing the PCREF Activists and Allies programme for anyone who wants to learn more, share their experiences and ideas, contribute to the work on organisational competencies, and help us spread the word so more people can get involved.

Staff

If you are a member of staff at South London and Maudsley and want to become an activist or ally or need further information visit our PCREF page on Maud HERE

Black Service Users and Carers

We have established a core group of Service Users and Carers who have already been involved in the PCREF programme and they will be looking for more Black service users and carers who are interested in joining this new PCREF action group.

It will advise on the best way to develop and promote the Activists and Allies programme, design the type of activities and opportunities you’d like to see and to help make the programme accessible so Black service users and carers and their networks can easily share their feedback, experiences and ideas. They will also be getting involved in detailed work as key partners in Phase 2 of the PCREF work.


*If you are Black service user or carer and interested in joining the action groups get in touch with the PCREF team at PCREFapproach@slam.nhs.uk for more information.

 
Community

A subgroup of the Communications and Engagement Workstream has been established called the Community Action Group. It comprises the Independent Advisory Group [IAG] Chairs and the PCREF Host Organisations - Lambeth Black Thrive and Croydon BME Forum - and is driving forward the Activists and Allies programme in the community. The Host Organisations are leading on maximising the number of questionnaires completed by people from local black communities as it is their views we particularly want, to inform the changes we need to make. Croydon BME Forum and Lambeth Black Thrive will also begin hosting a range of focus groups for PCREF at the beginning of July.

*If you a member of the community in Croydon, Lambeth, Lewisham or Southwark and would like to become a PCREF activist or ally or need further information click HERE

 

Want to know more?

More information about the PCREF programme go to:

Patient and Carer Race Equality Framework (PCREF)

PCREF - Croydon BME Forum

 If this newsletter has been forwarded to you and you would like to join the PCREF mailing list, email us at PCREFapproach@slam.nhs.uk