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EDGI UK: Eating Disorders Genetics Initiative

Overview

Join us in the eating disorders genetics initiative (EDGI).
Is open to anyone who:

  • Is aged 16+ 
  • Lives in England 
  • Is currently experiencing or has experienced an eating disorder in the past

We hope 10,000 people will take part: patients with anorexia nervosa, bulimia nervosa, binge eating disorder or any other eating disorder - are welcome to join.

Are you interested in taking part in this study? 

Find out more by filling in this form

Planned end date

31 Mar 2028 23:59

People types

Adolescent 13 - 17,Adult 18+

Inclusion Criteria

Participants referred to an eating disorder-specific NHS service aged 16 or over.

Participants who have a lifetime occurrence of anorexia nervosa, bulimia nervosa, binge-eating disorder, or any other eating disorder defined in DSM-5.

Participants who have been diagnosed and/or treated for anorexia nervosa, bulimia nervosa or binge-eating disorder or any other eating disorder defined in DSM-5.

Participants with a probable and undiagnosed eating disorder identified through a screening questionnaire.

Participants who have not stated their refusal to take part in future research.

Participants who are willing to donate a biological sample for genetic analysis.

Exclusion Criteria

Individuals without capacity to provide informed consent

Individuals under the age of 16

Individuals who do not have a current diagnosis or who do not meet the screening criteria for DSM-5 eating disorders.