Blood Borne Viruses
New Opt Out BBV Testing in our EI services
We are running a pilot project in our Early Intervention Teams offering ‘opt-out’ testing for Blood Borne Viruses (HIV, Hepatitis B and Hepatitis C). The NHS already does this in many Emergency Departments across England – it has helped many people access life saving treatment.
Why We Test for BBVs
Blood Borne Viruses can exist in the body for many years without causing symptoms but can start to make us very unwell overtime. Early detection is crucial for effective management and treatment.
When you visit some of our Early Intervention Psychosis teams at South London and Maudsley and require blood tests, we will also screen for BBVs. This screening is part of our routine care to help protect your health and the health of those around you. This is an "opt-out" test, meaning the screening will be done unless you choose to decline
There are posters and information leaflets in the areas where opt-out testing is offered.
In south London we have a high prevalence of BBVs (that is, a high number of people living with these conditions). In our SLaM service user population, it is even higher.
We know that people living with Severe Mental Illness (SMI) find it more difficult to access generic physical health services (eg GP, sexual health clinics) as easily, so may not have another opportunity to test for BBVs.
BBVs can also cause psychosis, due to infection and inflammation in the brain. Its important to test to rule out if your psychosis is related to these.
There is very effective treatment for Blood Borne Viruses and people can live long healthy lives.
Consent
Testing for BBVs in our will occur on an 'opt-out' basis. This means if you have a blood sample taken as part of your care, we will automatically test for BBVs.
If you don’t want to be tested, you can opt out, just let your team know before having blood tests.
If you are unsure, the team would be happy to chat through any concerns you have.
How the BBV Screening Works
1. What's Included
The BBV screen tests for HIV, Hepatitis B, and Hepatitis C.
2. Opt-Out Option
If you prefer not to be tested, please inform the nurse or your care co-ordinator before your blood is taken.
3. Why It's Important
Many people are unaware they've been exposed to these viruses. Knowing your status helps you take control of your health.
What to Expect After the Test
- Negative Results: If your test results are negative, we will not contact you, as no further action is needed.
- Positive Results: If any of your results are positive, we talk through this with you, support you in any way we can and refer you to a specialist team.
Specialist Team:
Depending on the positive result this could be the HIV team or the Hepatitis Team at your local hospital. They will see you to give you expert support with the result and offer any other tests that might be needed. They will coordinate your care and discuss different treatment options with you.
What if You Don't Want to Know Your Results?
It's understandable to feel anxious about test results. However, it's always better to know your status so that you can access treatment if necessary. If you choose not to know your results, please inform the healthcare professional taking your blood.
Privacy and Confidentiality
Your privacy is our priority. All test results and personal information are handled with the utmost confidentiality. Only the relevant healthcare professionals involved in your care will have access to your results - this may include your GP and specialist HIV, Hepatitis teams.
Common Questions and Concerns
Does an HIV test affect my ability to get life insurance or a mortgage?
No, a negative HIV test has no impact on life insurance or mortgage applications. Even with a positive result, insurance companies recognize that HIV is a manageable condition with proper treatment.
What should I do if I'm worried about a positive result?
We understand that this can be a stressful time. Our teams are here to support you with any questions or concerns. Please don't hesitate to reach out to your care co-ordinator or if you prefer, contact the HIV or Hepatitis charities listed below.
Useful Contacts and Resources
For any questions regarding BBV screening please contact your Early Intervention team. Our lines are open Monday to Friday, 9 am to 5 pm. You can leave a message anytime, but please note that messages are responded to during business hours only (excluding bank holidays). If the team is busy, please leave a message, and they will return your call as soon as possible.
HIV Information:
- AIDS Map: www.aidsmap.com
- NHS (HIVpage): www.nhs.uk/conditions/hiv-and-aids
- Terrence Higgins Trust: Leading HIV charity for advice and support.
Tel: 0808 802 1221 Email: info@tht.org.uk Website: www.tht.org.uk
- CASCAID: HIV related mental health service
Website: www.slam.nhs.uk/service-detail/service/cascaid-hiv-liaison-service-118
Hepatitis Information:
- British Liver Trust: Support for those affected by liver disease.
Helpline: 0800 652 7330 Website: www.britishlivertrust.org.uk
- NHS (Hepatitis page): www.nhs.uk/conditions/hepatitis
- Hep C U later: Information website on Hepatitis C www.hepculater.com
- The Hepatitis C Trust: Charity which supports people living with Hep C
Tel: 020 7089 6221 Website: www.hepctrust.org.uk
- Hep B companion: Peer led organisation supporting people living with Hep B
Website: www.hepbcompanion.org
