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The suggestion that it wouldn’t always be me talking about my child to professionals was raised a few years ago, during a conversation with Health. “We couldn’t be discussing this with you if he was 16,” they said. At the time I was confused, disgruntled – he wasn’t yet 16, why make the point? I just wanted to find out the next steps to appeal a referral they’d turned down.

I found out about the opportunity to contribute to the Strategy through the Parent Forum linked to my child’s treatment at SlaM. Although I am an autistic adult, I joined as a parent of an autistic child who had received treatment through the Trust.

An event organised by researchers from King’s College London and the Maudsley

World Down Syndrome Day (WDSD) is celebrated on 21 March and is a global awareness day officially observed by the United Nations since 2012.  The 21^st date of the third month was selected to represent WDSD to signify the triplication (trisomy) of the 21^st chromosome that occurs in people with Down syndrome.