Estia Blog Posts
Moving from asking me, to asking my child – a bit of a journey

The suggestion that it wouldn’t always be me talking about my child to professionals was raised a few years ago, during a conversation with Health. “We couldn’t be discussing this with you if he was 16,” they said. At the time I was confused, disgruntled – he wasn’t yet 16, why make the point? I just wanted to find out the next steps to appeal a referral they’d turned down.
Read Moving from asking me, to asking my child – a bit of a journey…Involvement in the Autism Strategy

I found out about the opportunity to contribute to the Strategy through the Parent Forum linked to my child’s treatment at SlaM. Although I am an autistic adult, I joined as a parent of an autistic child who had received treatment through the Trust.
Read Involvement in the Autism Strategy…Celebrating World Downs Syndrome Day 2023

An event organised by researchers from King’s College London and the Maudsley
World Down Syndrome Day (WDSD) is celebrated on 21 March and is a global awareness day officially observed by the United Nations since 2012. The 21st date of the third month was selected to represent WDSD to signify the triplication (trisomy) of the 21st chromosome that occurs in people with Down syndrome.
Read Celebrating World Downs Syndrome Day 2023…Transitioning adult services for young people with learning disability

Transition to adulthood marks a large change in anybody’s life. Think about your own experience of transition, at the age of 18 suddenly facing an adult world. For some, this may be an exciting prospect. For others, this can be an incredibly difficult and stressful time in their lives.
Read Transitioning adult services for young people with learning disability…Adding value to leaders

Have you ever experienced difficult situations at work and left feeling that this you have little left to offer?
In the context of the workplace the term resilience is often associated with the capacity to thrive, rather than just survive in high stress environments but over the past two years, I have experienced resilience as a way to survive and not thrive.
Read Adding value to leaders…